Posts from the ‘1 year’ Category

Dead tired

That’s me, dead tired. After I got home at 4:30am last night, Emmett John woke up screaming in pain from reflux issues. Since I was already awake conscious I took him downstairs. Of course, he was tired and exhausted but figured 4:30am was as good a time as any to stay up for the day.

You know, I used to pull all-nighters all the time back in the day. This has taught me that I am no longer a Spring-chick and all-nighters are no longer an option for me.

* posted on the fly w/o the use of proper editing tools 😉 *

~ Lizzeann

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Ready or not…

And I’m not ready. Mr. Emmett John’s initial appointment with his Neuro-Developmental Pediatrician is today at 12:30pm. We’ve been waiting for about a month for this appointment but it feels like we’ve been waiting so much longer than that. Now that the day is here, I’m not ready.

(I tried to post this from my phone on Monday while we waited for the nurse to take us back for his appointment with Dr. Dela but it didn’t work. So now the date on it may be showing as Wednesday, June 22nd, but I assure you he doesn’t see Dr. Dela again until October. Just an FYI.)

* posted on the fly w/o the use of proper editing tools 😉 *

~ Lizzeann

Straight Out of the Camera #3

If you would like to join the fun of Straight Out of the Camera just head on over to Jan’s blog Murrieta365. =)

In honor of Father’s Day, I present to you my Straight Out of the Camera.

I took this photo during one of our many trips to the local park recently. I just loved how Daddy has both of his Boys and everyone is walking together, rather than running.

Here’s another one, just because I love it and couldn’t resist posting it. =)

I just love this photo of the Boys. It’s so rare that Mr. Emmett John slows down for any amount of time; so to see them walking together was its own treat. Then for them to hold hands, which Emmett John initiated, was the icing on the cake.

camera: FujiFilm FinePix Z35

Sleep is *highly* over-rated

At least that’s what I’ve been telling myself these past few days as Mr. Emmett John has gotten stuck in this 1am screaming, wailing, flinging jag. Plus when you add some Fibro induced insomnia it’s a BOGO. Everyone loves a BOGO, Not!

Last night he woke up at 1am. Did a little screaming, wailing and flinging until 2am. He and I relocated at 2am to the living room. He stayed up watching “Toy Story” until 4am while I dozed proped my eyelids open with toothpicks. Then we slept from 4-6am, which is when Elliott Richard woke up.

And now we are dancing again…

* posted on the fly w/o the use of proper editing tools 😉 *

~ Lizzeann

Heat and Sensory Integration Disorder

There are days when Sensory Integration Disorder is the absolute bane of my existance!

In all honesty, I’m being 100% serious here. Emmett John’s unwillingness to wear any clothes what-so-ever 99% of the time aside, Summer is the one time when Sensory Integration Disorder drives me batty. There is absolutely no way for me to tend to all three sensory diets at the same time, which is the only way Rob or I will get any sleep.

Gavin is cold all the time. Even when it’s 99 degrees outside, he’s “cold”. We fight with him over the ceiling fan (“It clicks and I think it’s going to fall.”), the box fan (it hums), the comforter (“I need it!”) and his clothing choices (sweats). If his sweats aren’t available, he’s been known to go around the house – in the summer – wearing his winter coat! He doesn’t even like the windows open – not that we can anyway because it’s a big, ole falling hazard for Gavin who likes to stand in the window.

Elliott Richard is more like your typical kid only he’s hot all the time. It could be -10 degrees outside and he’s hot. He wears coats only because he knows he has to. Heck, he wears clothing period only because he has to and half the time he won’t keep his pants on to save his life. Occassionally, he’ll leave shorts on but more often than not he strips down to his shirt and underpants as long as he’s comfortable in his surroundings. This is how I was as a child.

That brings us to Mr. Emmett John. He is just like Elliott Richard, only worse. If it’s cold, he sweats. Not just a little bit either, buckets of it! If it’s hot, he sweats. If it’s a perfect, cool Spring/Fall day, he sweats. But if you try and cool him down at all – be it with a fan, air conditioner unit or removal of clothing – he will continue to sweat buckets but will get cold. Once he’s cold, he insists on being covered up with a comforter even though he’s still sweating buckets. Emmett John is the one I often leave home without his coat on because I just feel so bad putting a coat on over his clothes when I know he’s already so hot.

As much as I love and cherish all three of my Boys, these disorders – Aspergers/Autism, Sensory Integration Disorder etc – that have spectrums and are never the same way from one child to the next, are seriously getting on my last nerve.

* posted on the fly w/o the use of proper editing tools 😉 *

~ Lizzeann

@#!* morning?

Well, here we are again faithful readers…it’s 3:00 a.m. and I am awake (If only just barely.) with Mr. Emmett John.

Ducky isn’t involved this morning. So she’ll live to see another day. Although I could do with a good scapegoat right about now. (lol)

Emmett John woke himself up. Then he tried to get out of bed by climbing over Rob’s head.

We stopped him from getting out of bed. All Hell broke loose.

He was sort-of awake. Just enough to scream loudly enough to wake the dead – Elliott Richard and Gavin included.

He kept screaming so we came downstairs. Now he’s sitting on my chest watching “Toy Story” while I fight to stay awake.

This pattern/routine has got to go. Period. Bye-bye. See you later. End of story.

* posted on the fly w/o the use of proper editing tools 😉 *

~ Lizzeann

Moody Monday #2: Sporty

Sporty

  • Appropriate for sport or participation in sports.
  • flashy or showy

Mr. Emmett John with the boys new goggles for tubby time.

camera: Blackberry CURVE 8330 2MP