I keep trying to get this blog exactly right. Just perfect – the way I want it. I’ve decided that it’s going to take me close to forever to get that accomplished and if I keep putting off my first official post until then…well, you may never hear from me again. (lol)

Emmett John had his ABR sedation hearing test yesterday. We’ve been waiting for this test for months. He had his basic OEA hearing test in January and the Audiologist couldn’t officially diagnose him but she said she felt comfortable saying that he had “moderate to severe hearing loss”. Meaning he was very close to being profoundly deaf. I was so sure he was deaf. I was ready for him to be deaf. I was ready to learn sign language.

Honestly, with the Hell that we live through every single day with Gavin and his Autism and Bi-Polar and whatnot. The Hell I endured at the hands of NTD and his mother before I met Rob. Then the continued Hell we suffered because of them after Rob and I were together – all throughout my divorce and custody battle. The various moments of Hell throughout my childhood. Surely, God wouldn’t do this…not again. Surely, he watched and he understood. Surely, he knows and understands that we can’t handle another Autistic child.

Oh forget the we*I* cannot handle another Autistic child…at least not right now. I just can’t. Not with Gavin manic the way he is. Not with Gavin hearing voices again. Starting puberty and having medication changes because we are on the “medication roller coaster” again. Not with Gavin having meltdowns of a caliber unlike anything I’ve ever seen from him before. It’s only a matter of time before he breaks his window or seriously injures himself.

Emmett John’s hearing is perfect. Everything we say…every sound…every everything he hears physically. But developmentally, he doesn’t hear most things. Apparently, this is common in Autistic children. I didn’t know this. He doesn’t make good eye contact – I thought he did. He throws these fits – I thought they were normal 21 month old fits…the Terrorist 2’s…now, not so much. So he can hear us but doesn’t talk. He babbles – like a 9-12 month old. I have no idea if he’ll ever actually talk. Does that mean he’s more likely Full-fledged Non-Verbal Autistic? Or could he still be some sort of High Functioning Asperger’s?

This will probably sound crazy and stupid to many of you. But how many times must I mourn the loss of my baby?!

How many?! He stopped responding to us. So obviously he couldn’t hear us. Right? So we schedule and take him for his OEA hearing test and he fails. The Audiologist says she feels he has moderate – severe hearing loss. I mourn the loss of my baby boy. I mourn the fact that I likely will never hear his voice the way it was intended. I mourn everything that he will never do. Never experience. I mourn every time he shoves a finger in his ear and gets frustrated because he appears to be unable to hear. I mourn because I don’t know when the last time he heard our voices was. Will he be able to remember them? How long can he hold on to those memories? I mourned many things when I believed Emmett John was deaf.

Yesterday all of that was Gone. Swept away in a moment. I had an Audiologist telling me that my baby could hear. Explaining that his “hearing was perfect” and he “doesn’t make good eye contact” and “hearing problems are common in Autistic children“. Now all of my work to recover and work on my mourning over his hearing loss had disappeared in a flash. The sedation nurse was so positive about the fact that Emmett John could hear – isn’t this great? Of course it’s great. It’s wonderful and I’ll do cartwheels – as soon as I mourn, again.

So here I am. Mourning my Baby Boy, again. Mourning for him. Mourning for us. This isn’t a life I would have chosen for him. This isn’t something I would have chosen to add to our lives – ever.

I’m mourning the loss of Emmett John in a host of new ways. I’ll recover in a few days. Until then, I’m just going to mourn and work on trying to make my peace with things.

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