Gavin has been a complete and total champ today. I wish I knew more about hearts. How they work. What a heart echo is *supposed* to look like. What a 12 lead EKG is *supposed* to look like. I wish I knew more about Marfan Syndrome. Does he really need another "Syndrome" on top of everything else?!?! How is that even fair?!?! I did some reading about Marfan Syndrome the other night. I stopped after reading that until recently the average life expectancy for a patient with Marfan's Syndrome was 32 years old. I wanted to run away when we told the nurse about the *Deme's genetic aortic dissections and the first thing she said was, "Ah, undiagnosed Marfan's Syndrome." *And she wrote it in his chart!!!* I don't want it in his chart! I don't want him to have another syndrome! So far today he's had an EKG and an Echocardiogram. I couldn't tell anything about about either test while they happened so everything looked bad and very horrible to me. So I stopped watching.
Elizabeth Gorski

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